A ground breaking partnership has been launched today to find out what palliative and end of life care research is important to people who are likely to be within the last years of life, their families, and the professionals who work with them.
Initiated by Marie Curie Cancer Care, a large number of organisations have come together to form “the Palliative and end of life care Priority Setting Partnership” (PeolcPSP) with the James Lind Alliance.
For the first time, people directly affected will get the chance to have their say in setting research priorities for palliative and end of life care. The charity wants to hear from anyone likely to be in the last years of life, current and bereaved carers, their families, and frontline social and healthcare professionals.
The aim of the partnership is to ensure that future research brings the greatest possible benefit to people at the end of life, and their carers and families, by identifying what questions are of the greatest importance to them.
Joan McEwan, Marie Curie Cancer Care Head of Policy and Public Affairs, said: "Research is the powerful evidence which can identify the needs of patients and carers and any inequalities or shortfalls in our services. It can help us decide where to channel our resources to provide the right care to those who need it at the right time.
"It also helps us deliver the best service we can for our investment which is more important than ever with the pressures of an increasingly older population coupled with the current economic & financial constraint."