'The miracle op that let me see my twins for first time'
Ian Tibbetts had being going blind for 15 years and was close to despair. Then his sight was restored by a radical operation using tissue from one of his teeth. Jonathan Brown reports
It is teatime in the Tibbetts household and four-year-old twins Callum and Ryan arrive home from school and sprint excitedly towards their father, brandishing a jigsaw. Later, they will complete the puzzle before he puts them to bed. While this is a normal routine for most families, for Ian Tibbetts it is tantamount to a complete miracle.
This time last year, the former factory worker was facing blindness. His sight was so bad that he had never seen his sons' faces. "They were just shapes. I couldn't make them out. I had to actually learn to tell them apart by their voices. I could tell whichever one it was by the way they spoke and sometimes by how quickly they moved," he now recalls.
But thanks to an extraordinary operation in which one of his teeth was implanted in his eye socket to act as a cradle for a false lens, the veil has been lifted on his life. The extreme procedure, known as osteo-odonto-keratoprothsesis (OOKP) is carried out on just five patients with irreversible corneal scarring each year by the leading ophthalmic surgeon Professor Christopher Liu at the Sussex Eye Hospital in Brighton. Because the tooth tissue is the patient's own, the body doesn't reject it. His extensive team is the only one of its kind in Britain and Professor Liu is engaged in a global teaching project to bring OOKP to other countries, particularly in the developing world where catastrophic eye injuries routinely result in lifelong blindness.
Ian's descent into darkness began more than two decades ago when he suffered an industrial accident. As he was removing a piece of scrap metal from an oven it struck him in the right eye, ripping his cornea in six places. The wound healed and he returned to work but a year later began to suffer recurrent eye problems.
Puzzled doctors treated him for a range of conditions including conjunctivitis, detached retina, corneal abscess and persistent infection, but he lost the sight in his right eye in 1998, followed a decade later by nearly all the remaining vision in his left.
Around 360,000 people are registered blind or partially sighted in the UK – 8,000 of them in Northern Ireland. The impact can be deeply traumatic, explains Professor Liu. "Very often people's self-esteem and mood can be affected. They are not able to do the job they were doing. They can lose their friends and become dependent on other friends and family. It is quite horrendous, really," he says.
Ian (43), from Telford in Shropshire, was no exception. Unable to work, he was forced to give up his interests in 3D model-making and motorbikes and could barely make out his team, Manchester United, on the TV.
He was drinking heavily during the day and spending the remainder of his time in bed while his wife Alex (35) worked and looked after the house. "Everything he liked to do was taken away," she says. Like all those who eventually undergo OOKP – some of whom have had up to 40 operations – he was at the end of the road. He had lost count of the procedures he had undergone and was advised to go home and prepare to go blind.
But Ian was desperate to ensure that he would be able to see his children grow up. He contacted his local consultant after learning about advances in stem cell technology and was told that while this did not offer hope at present, OOKP might, and was referred to Professor Liu. "I had to try something," he says. The two-stage surgery involves the removal of a piece of tooth and bone from the patient's mouth, which is then cut down to shape and an optical cylinder inserted in a drilled hole. This is then inserted in a pouch cut in the flesh under the non-operative eye, while a flap of skin is removed from the inside of the cheek and stitched on to the front of the eye due to receive the tooth.
Four months later, when the tooth has developed a blood supply, another op is carried out to remove part of the cornea, the iris and the vitreous (the gel inside the eye), while the tooth and bone lamina is then cut out of the pouch and stitched into the eye socket, where it is covered by the piece of cheek skin. "The technical success rate is close to 100%. The number of people who will see well for a very long time is two-thirds to three-quarters," says Professor Liu.
Unfortunately for Ian, there was no miraculous moment of restored sight when his bandages were lifted last December. He recalled: " I went right on a downer. I thought that's it – it's going to bugger my Christmas up. It had already buggered the summer up and the boys' birthday. I was hoping to see for their birthday."
But weeks later when the stitches were removed, he began to be able to make out shapes, colours and movement. And then finally for the first time he could see Callum and Ryan.
"I had a picture in my head of what they looked like but they were better," he says. "I'm a bit biased there. The image in my mind was totally different to how they were – the features. I gave them a big hug and a kiss."
The Day I Got My Sight Back, tomorrow, BBC1, 10.35pm