Belfast Telegraph

Monday 22 September 2014

Mother's vow on tumour boy therapy

Sally Roberts said she 'absolutely' did not want her son Neon to undergo chemotherapy

The mother of a seven-year-old boy suffering from a brain tumour has said she plans to continue her legal battle over his treatment.

Sally Roberts said she "absolutely" did not want her son, Neon, to undergo chemotherapy after having completed a course of radiotherapy treatment for his brain tumour.

The 37-year-old told ITV's Daybreak programme that she hoped to mount further court action in spite of failing in legal bids to prevent her son receiving a follow-up operation and a course of radiotherapy for the cancerous tumour.

"I needed to have £80,000 in the kitty but fortunately I have been seeking other options and I should be able to mount some form of battle," she told the programme.

Ms Roberts, a New Zealander living in Brighton, East Sussex, said her son was feeling "absolutely rubbish" after undergoing radiotherapy. "He is not great, he has just had radiotherapy so he is very ill, weak, fragile, emotional," she said.

Her remarks prompted Dr Hilary Jones, sitting beside her during the interview, to warn that without treatment he would face a "death sentence".

"Any parent who is faced with a choice about radiotherapy in this situation, today, next week, next month, please talk to the doctors, you will be reassured," he said.

"If this was my son, I wouldn't hesitate to go ahead with the evidence-based treatment we currently have. Yes, there are side-effects, they are predictable, and we know about them. But the alternative is much worse than that."

Ms Roberts's interview comes after Neon's father, Ben, who is separated from her, said their son was making "good progress" after receiving radiotherapy treatment as planned.

A statement released on his behalf by his lawyer said: "He (Neon) is currently having a short break from treatment but will start his chemotherapy in early April, after his birthday, as planned. Mr Roberts and his treating doctors are very pleased with how well Neon has reacted to the treatment and are cautiously optimistic about his long-term prognosis."

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