Belfast Telegraph

MND patients hit by £10,000 in extra costs

By Ella Pickover

People with motor neurone disease (MND) have to shell out almost £10,000 because of costs associated with the disease.

A new cost analysis from the think tank Demos showed that the average patient needs £9,645 every year to pay for their additional needs.

Bills for care, extra assistance around the home, additional money for insurance and household bills all contribute to the cost, according to a new Demos report. On top of the additional expenditure for regular needs, patients will also each pay out at least £2,175 in one-off costs for things like housing adaptations and adapting or buying a vehicle.

MND is a rare condition that affects around two in every 100,000 people in the UK.

The Demos report - based on a survey of patients and their families from England, Wales and Northern Ireland - also found that 82% of people living with MND have experienced a negative financial impact following diagnosis.

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