Belfast Telegraph

Monday 21 April 2014

First US face transplant patient reveals face

This is a photo of Connie Culp, after an injury to her face, left, and then as she appears today. Culp is underwent the first face transplant surgery the United States at the Cleveland Clinic in December 2008. Culp spoke to the media at a news conference at the Cleveland Clinic in Cleveland, on Tuesday, May 5, 2009. The 46-year-old mother of two lost most of the midsection of her face to a gunshot in 2004. (AP Photo/Cleveland Clinic-HO)

Five years ago, a shotgun blast left a ghastly hole where the middle of Connie Culp's face had been. Five months ago, she received a new face from a dead woman.

Culp stepped forward yesterday to show off the results of America's first face transplant, and her new look was a far cry from the puckered, noseless sight that made children run away in horror.

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Culp's expressions are still a bit wooden, but she can talk, smile, smell and taste her food again. Her speech is at times a little tough to understand. Her face is bloated and squarish, and her skin droops in big folds that doctors plan to pare away as her circulation improves and her nerves grow, animating her new muscles.



But Culp had nothing but praise for those who made her new face possible.



"I guess I'm the one you came to see today," the 46-year-old Ohio woman said at a news conference at the Cleveland Clinic, where the groundbreaking operation was performed. But "I think it's more important that you focus on the donor family that made it so I could have this person's face."



Up until yesterday, Culp's identity and how she came to be disfigured were a secret.

Culp's husband, Thomas, shot her in 2004, then turned the gun on himself. He went to prison for seven years. His wife was left clinging to life. The blast shattered her nose, cheeks, the roof of her mouth and an eye. Hundreds of fragments of shotgun pellet and bone splinters were embedded in her face. She needed a tube into her windpipe to breathe. Only her upper eyelids, forehead, lower lip and chin were left.



A plastic surgeon at the Cleveland Clinic, Dr. Risal Djohan, got a look at her injuries two months later. "He told me he didn't think, he wasn't sure, if he could fix me, but he'd try," Culp recalled.



She endured 30 operations to try to fix her face. Doctors took parts of her ribs to make cheekbones and fashioned an upper jaw from one of her leg bones. She had countless skin grafts from her thighs. Still, she was left unable to eat solid food, breathe on her own, or smell.



Then, on 10 December, in a 22-hour operation, Dr Maria Siemionow led a team of doctors who replaced 80 per cent of Culp's face with bone, muscles, nerves, skin and blood vessels from another woman who had just died. It was the fourth face transplant in the world, though the others were not as extensive.



"Here I am, five years later. He did what he said — I got me my nose," Culp said of Djohan, laughing.



In January, she was able to eat pizza, chicken and hamburgers for the first time in years. She loves to have cookies with a cup of coffee, Siemionow said.



No information has been released about the donor or how she died, but her family members were moved when they saw before-and-after pictures of Culp, Siemionow said.



Culp said she wants to help foster acceptance of those who have suffered burns and other disfiguring injuries.



"When somebody has a disfigurement and don't look as pretty as you do, don't judge them, because you never know what happened to them," she said. "Don't judge people who don't look the same as you do. Because you never know. One day it might be all taken away."



It's a role she has already practiced, said clinic psychiatrist Dr. Kathy Coffman.



Once while shopping, "she heard a little kid say, 'You said there were no real monsters, mommy, and there's one right there,"' Coffman said. Culp stopped and said, "I'm not a monster. I'm a person who was shot," and pulled out her driver's license to show the child what she used to look like, the psychiatrist said.



Culp, who is from the small town of Unionport, near the Pennsylvania border, told her doctors she just wants to blend back into society. She has a son and a daughter who live near her, and two young grandsons. Before she was shot, she and her husband ran a painting and contracting business, and she did everything from hanging drywall to a little plumbing, Coffman said.



Culp left the hospital on 5 February and has returned for periodic follow-up care. She has suffered only one mild rejection episode that was controlled with a single dose of steroid medicines, her doctors said. She must take immune-suppressing drugs for the rest of her life, but her dosage has been greatly reduced and she needs only a few pills a day.



The clinic expects to absorb the cost of the transplant because it was experimental, doctors said. Siemionow estimated it at $250,000 to $300,000. That is less than the $1m that other surgeons estimate it costs them to treat other severely disfigured people through dozens of separate operations, she said.



Also at the Cleveland Clinic is Charla Nash of Stamford, Connecticut, who was attacked by a friend's chimpanzee in February. She lost her hands, nose, lips and eyelids, and will be blind, doctors said. Clinic officials said it is premature to discuss the possibility of a face transplant for her.

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