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Support for Motor Neurone Disease sufferers

Published 03/10/2012

No one could fail to be affected by Jennifer Grainger's powerful account of nursing her mother, Barbara, through the last weeks of her life published in the Belfast Telegraph (News, October 2).

In particular, many of your readers will have wondered how they themselves would deal with a diagnosis of motor neurone disease and the discussions and decisions they would wish to be involved in about their end-of-life care.

The Motor Neurone Disease Association is here to provide support and ensure the highest possible standards of care for everyone with the disease.

A diagnosis is a frightening prospect for families, as the disease gradually takes away someone's ability to walk, talk or take care of themselves.

We believe people with motor neurone disease should be supported to achieve the highest quality of life in the time remaining to them, access the best possible care and to die with dignity.

Our work includes operating a motor neurone disease care network in partnership with the NHS to help ensure well-coordinated care and offering emotional and practical support through our motor neurone disease Connect service and Northern Ireland-based staff and volunteers.

Anyone who wishes to seek advice or has concerns about care, can contact us on 084 5762 6262, or to find out more you can visit www.mndassociation.org.

STEVE BELL

Director of care

Motor Neurone Disease Association

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