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Kidney disease that devastated rugby star's life

Published 18/11/2015

Jonah Lomu suffered from a rare kidney condition which cut short his career, and ultimately his life.

The All Blacks winger was diagnosed with nephrotic syndrome in 1996 and later had a kidney transplant in 2004 before it failed in 2011.

But what is nephrotic syndrome and how can it be treated?

:: Nephrotic syndrome causes a person's kidneys to malfunction, leading to large amounts of protein to leak into their urine, according to NHS Choices.

:: The symptoms include swelling around the eyes and lower legs, infections caused by the loss of antibodies and serious blood clots.

:: The syndrome is brought on by what doctors call "minimal change disease" as kidney tissue appears nearly normal under a microscope. But the syndrome can also be inherited as a faulty gene or occur as the result of other kidney conditions, diabetes or some cancers.

:: It can affect people at any age but is commonly seen in young children, particularly boys. It is uncommon and NHS Choices estimates one child in 50,000 is diagnosed each year. It also tends to be more common in those with an Asian background or history of allergies but it is unclear why.

:: It can be treated with steroids, diuretics - or water tablets - and penicillin but in severe cases doctors recommend removal of one or both kidneys and put a patient on dialysis until a donor can be found for a transplant.

Jonah Lomu has died at the age of 40.
Jonah Lomu has died at the age of 40.
Lomu's made a huge impact at the 1995 Rugby World Cup.
In 1995, Jonah Lomu became rugby's first global superstar when he took the Rugby World Cup by storm. Lomu scored seven tries in the tournament but it was his performance against England in the semi-final which really caught the eye. The twenty-year-old winger, who weighed just under twenty stone and towered over his opposition at 6'5", famously trampled over Mike Catt on his way to scoring four tries and dumping England out of the tournament in a 45-29 victory for the All Blacks. After the game, England captain Will Carling famously described Lomu as 'a freak'. The Kiwi's further eight tries in the 1999 tournament make Lomu the all-time Rugby World Cup top try-scorer with fifteen tries.
Jonah Lomu (right) is a big draw, despite never having won the Rugby World Cup
Born in Auckland to Tongan parents in 1975, Jonah Tali Lomu spent the early part of his childhood in Tonga.
He moved out to the left wing by the time he won the first of his 63 Test caps as the youngest ever All Black - against France at the age of 19 years and 45 days - and it was as a move none would argue with.
One of the All Blacks greatest players was also one of the sports most intimidating. Standing at 6ft 5in, Lomu would dwarf his opponents and the ones that dared tackle him would be swatted away like flies. That he has since moved into the world of body building and can now be seen in skimpy underwear striking silly poses has somewhat tarnished his fearful reputation.
Superstar: Jonah Lomu in action for the All Blacks
In front of a world record crowd of 109,874 in Sydney, Jonah Lomu scored a last minute try for the All Blacks, giving them an incredible victory against Australia.
His imposing frame meant he was soon making an impression on the rugby pitch. However, when he represented New Zealand schoolboys, it was as a number eight.
Jonah Lomu limbers up with the New Zealand squad in Auckland today" data-title=" Jonah Lomu limbers up with the New Zealand squad in Auckland today" >
Jonah Lomu limbers up with the New Zealand squad in Auckland today
Despite his World Cup heroics, Lomu never won a World Cup.
Lomu looks on during the IRB 2011 Rugby World Cup Opening Ceremony at Eden Park on September 9, 2011 in Auckland, New Zealand. (Photo by Phil Walter/Getty Images)
His international career ended in 2002 and t he following year he spent the first of many hours receiving kidney dialysis treatment. The year after that Lomu revealed he needed a transplant. He had it - but his body rejected it in 2011 and the dialysis continued.
Lomu was in the United Kingdom for the recent World Cup, where he tweeted passionately about the sport he still loved. The success of "the brothers in black" was relished publicly by someone who had lived the moment himself. He is survived by wife Nadene and their young sons Brayley and Dhyreille.
Rugby World Cup 1995 New Zealand vs Ireland Jonah Lomu ©INPHO/Billy Stickland
Jonah Lomu is tackled by Gary Longwell of Ireland Mandatory Credit©INPHO/Billy Stickland
Ireland v Barbarians. All Black Jonah Lomu playing for the Barbarians breaks through the Irish defence during the friendly at Lansdowne Road, Dublin Sunday May 28 2000. PA Photo: Chris Bacon...S
Jonah Lomu scores a try against Ireland during the second half of their international rugby union game at Lansdowne Road, Dublin, November 17, 2001. REUTERS/Paul McErlane...S
New Zealand Rugby star, Jonah Lomu at the launch of Ballygowan's new Sports Pack in Dublin's Shelbourne Hotel. Picturen By David Conachy. 16/01/2003.
All Black star Jonah Lomu is tackled by four year old Dan Sheehan at the launch of the new Ballygowan sports Pack at Stephens Green in Dublin. 16/01/2003
Jonah Lomu of New Zealand sings the national anthem before the start of the England v NZ International, Twickenham, London 09/11/2002.
New Zealand Rugby star, Jonah Lomu at the launch of Ballygowan's new Sports Pack in Dublin's Shelbourne Hotel. Picturen By David Conachy. 16/01/2003.
Jonah Lomu and Denis Hickie in the International Friendly Ireland vs New Zealand All Blacks 17/11/2001. ©INPHO/Patrick Bolger
Cardiff Blues and former All Black Jonah Lomu arrives for the BBC Sports Personality of the Year, Sunday December 11, 2005.
Rugby Legend Jonah Lomu turns on the Christmas Lights in Limerick.

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