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I'm going blind at 22

I am 22 and finishing my university degree this year, but I’ve just found out that I’m going to go blind. This news has shaken me completely and I don’t know what I’m going to do with my life.

I’ve only told a few friends and my family, who are all telling me I’ll be fine but I just don't know how.

The doctor told me it’s a form of something called retinitis pigmentosa. I know I should start looking it up online, but I can't face it — I’m too scared of what I might find out. GK


If you do some research, you might become less frightened than you are.

While retinitis pigmentosa does mean a gradual, progressive loss of vision it doesn't mean you will lose your sight completely or soon.

RP Fighting Blindness is the charity for those with this condition and if you go to their website you will almost certainly be reassured.

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The rate at which vision deteriorates varies, but it is generally very slow and changes occur over years rather than months.

There is no reason for you to stop your studies or alter your immediate plans. It may be that you would like to talk to RP Fighting Blindness's helpline, tel: 0845 123 2354 about this. Should your sight deteriorate more rapidly, then their specialist team can help you find out about special training and rehabilitation courses.

You can also speak to them about aids and adaptations, if you need them.

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