Billy Caldwell 'no seizures and health vastly improved' since treatment, reveals mum Charlotte
Charlotte Caldwell, the mother of a severely epileptic Northern Ireland boy Billy has said her son's health has "vastly improved" and he has not had a single seizure since he was allowed his treatment over the weekend.
The Castlederg woman has now demanded to meet with both the Health Secretary Jeremy Hunt and Home Secretary Sajid Javid urgently within the next 24 hours for assurances moves are made to change the law and for guarantees she will not face another battle to get the life-saving medication.
Billy will be discharged from Chelsea and Westminster Hospital on Monday.
Charlotte said: "Billy is vastly improved. He has not so far had a single seizure since his anti epileptic medication was returned and administered. This is testament to the effectiveness of the treatment, and that mummies and not the Home Office know best."
Health Secretary Jeremy Hunt has said he hopes that a review of the law on the medicinal use of cannabis oil can be completed within months.
Ms Caldwell had seven bottles of cannabis oil confiscated at Heathrow Airport customs on June 11 after she brought them in from Toronto.
After a week-long struggle, Home Secretary Sajid Javid used "an exceptional power" on Saturday to return some of the medication.
The emergency measure allowed for one bottle to be returned and Ms Caldwell reported an improvement in her son's condition after taking the drug, but when this runs out a new application will have to be made for a licence.
Ms Caldwell credits the oil with keeping the 12-year-old boy's seizures at bay, saying he was seizure-free for more than 300 days while using it; but it contains tetrahydrocannabinol (THC), which is restricted in the UK.
Many other countries, including much of the US, Germany, Italy and the Netherlands, have legalised the substance's use medicinally.
Ms Caldwell said Billy was able to eat again following the resumption of his treatment, but the last few days, when his seizures had escalated, had been “absolutely horrendous”.
She added: "I want nobody in Government, and nobody who has been impacted by massively outdated laws, to be under any impression that this is job done.
"This is just the start."
- Review of law on medical use of cannabis oil must be swift, says Jeremy Hunt
- Billy Caldwell's mum wants meeting with ministers over drug ban
Belfast Telegraph Digital