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Dad's delight as Northern Ireland toddler becomes first in UK to get medical cannabis prescription

Robin Emerson with his two-year old daughter Jorja
Robin Emerson with his two-year old daughter Jorja
Robin Emerson with his two-year old daughter Jorja

By Tom Horton

A Co Down toddler with severe epilepsy is believed to have become the first child in the UK to be prescribed medical cannabis.

For two-year-old Jorja Emerson, the treatment is "the difference between her living and dying", according to her father.

Jorja, who is from Dundonald, suffers up to 30 seizures each day. She was prescribed the medication at a private hospital in London on Tuesday.

Her father Robin Emerson, a 33-year-old entrepreneur, hopes her treatment will pave the way for other children to gain access to the drug. "The dam has now broken open," he said.

Although other children are currently receiving medical cannabis treatment in the UK, this is the first time a prescription has been written by a doctor since the drug was rescheduled on November 1, according to campaign group End Our Pain.

The decision to reschedule cannabis products followed several high-profile cases, including those of young epilepsy sufferer Billy Caldwell from Co Tyrone, whose conditions appeared to be helped by cannabis oil.

NHS guidance says cannabis should only be prescribed when other treatment options have been exhausted.

Mr Emerson said this made getting a prescription difficult.

Jorja's treatment will cost her family around £12,000 per year, according to the group. Her epileptic seizures are caused by rare chromosome deletion and she is the only child with the condition on the island of Ireland, according to her father.

The drugs can only be prescribed by a specialist doctor, not a GP, on a case-by-case basis.

Sir Mike Penning MP, who co-chairs the All-Party Parliamentary Group on Prescribed Use of Medical Cannabis, said: "The political and parliamentary battle was fought and won over the summer. But there has been a mixture of over-caution and, in some cases, outright opposition from clinicians to prescribe.

"This has led to the frankly outrageous and cruel situation in which many families are having to consider travelling abroad to access the medical cannabis that is now legal here."

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