Belfast Telegraph

Belfast Castle to be illuminated for World Neurofibromatosis Awareness Day

By Angela Rainey

Landmarks, including Belfast Castle and Wembley Stadium, will light up tonight in spectacular colour to mark World Neurofibromatosis Awareness Day.

So far over 50 sites across the UK and Ireland – and more than 130 worldwide - have agreed to shine a light on the condition which causes disfiguring, painful tumours to grow on the nerves, and can be fatal.

Although more common than Duchenne muscular dystrophy, cystic fibrosis and Huntington’s disease combined, very little is known about Neurofibromatosis.

But it is estimated that one baby a day is born in the UK with the condition which has a strong genetic link and which can also cause learning difficulties.

To mark the awareness day The Neuro Foundation and Belfast Castle, which is 400 feet above sea level, will light up tonight and will be seen from across the city as darkness falls.

Director of The Neuro Foundation Karen Cockburn, said: “We are delighted that so many organisations have chosen to support World Neurofibromatosis Awareness Day in this way. 

“It is so encouraging that every country in the United Kingdom can join together with our friends in North America to stand up for all those affected by this incurable condition, and by raising awareness we hope to be able to provide greater support.”

Belfast Telegraph Digital


From Belfast Telegraph