Nearly 24 years after his only child was diagnosed with cystic fibrosis, Liam McHugh has been awarded with a British Empire Medal in the New Year's Honours List for raising £115,000 to help find a cure.
The Co Tyrone man has run 14 marathons to raise money to be used to fund research at the cystic fibrosis unit at Belfast's Royal Victoria Hospital.
Liam, from Castlederg, is celebrating his honour - although he is even more proud of his daughter Rachel's academic achievements, as she is currently studying for a PhD.
He said: "I'm over the moon to have received the BEM. It's a great change in what my wife and I were facing 24 years ago when Rachel was born. We knew nothing about it apart from the fact that a neighbour's child had it and had died recently at the age of 16."
Ed Owen, chief executive of the Cystic Fibrosis Trust, said: "I am sure I speak for many when I say that this honour could not have been awarded to a nicer and more inspiring person."
He had been an chaplain to the army, the Royal Air Force and the Territorial Army, but it was his work with the Royal British Legion in Garvagh, Co Londonderry for which the Rev Alan Knox has been nominated for in the New Year's Honours List.