Belfast Telegraph

Heartbroken family of Noah Coates confirm 12-year-old's death

Young schoolboy Noah before his illness took hold
Young schoolboy Noah before his illness took hold
Greg and Sarah Coates with Noah and Gracie
Mark Edwards

By Mark Edwards

The heartbroken family of brave 12-year-old Noah Coates from Carrickfergus have confirmed he has passed away.

Noah had suffered from Vanishing White Matter Disease, a devastating genetic condition which destroys myelin, the brain's white matter that insulates and protects nerves.

Noah's parents, Sarah and Greg, broke the news of his passing on social media on Wednesday evening.

"We are heartbroken beyond belief. Noah is finally free from all pain, although his wee body was broken his spirit was not ," his parents posted.

"Noah was the most courageous and bravest boy, and it was our honour and privilege to be his parents and we thank our Heavenly Father for the privilege .

Greg and Sarah Coates with Noah and Gracie

"Noah has gone home to heaven and is now in the loving arms of Jesus .

"He is our greatest gift from God and was filled with Grace, love and compassion.

"He loved God with all his heart and is now running, jumping and dancing before the Lord, filled with praise for his saviour.

"Thank you all for your prayers. Sarah, Greg and Gracie."

Noah's funeral will take place on Saturday, July 20 at Carrickfergus Elim Church at 1pm, followed by Victoria Cemetery.

The disease which Noah suffered from, an extremely rare form of Leukodystrophy, is estimated to affect just 250 worldwide.

It can leave sufferers unable to walk, talk or eat. It can also cause spasticity, reduced cognitive ability, blindness and deafness.

There is no known cure for the disease

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