Heartbroken family of Noah Coates confirm 12-year-old's death
The heartbroken family of brave 12-year-old Noah Coates from Carrickfergus have confirmed he has passed away.
Noah had suffered from Vanishing White Matter Disease, a devastating genetic condition which destroys myelin, the brain's white matter that insulates and protects nerves.
Noah's parents, Sarah and Greg, broke the news of his passing on social media on Wednesday evening.
"We are heartbroken beyond belief. Noah is finally free from all pain, although his wee body was broken his spirit was not ," his parents posted.
"Noah was the most courageous and bravest boy, and it was our honour and privilege to be his parents and we thank our Heavenly Father for the privilege .
"Noah has gone home to heaven and is now in the loving arms of Jesus .
"He is our greatest gift from God and was filled with Grace, love and compassion.
"He loved God with all his heart and is now running, jumping and dancing before the Lord, filled with praise for his saviour.
"Thank you all for your prayers. Sarah, Greg and Gracie."
Noah's funeral will take place on Saturday, July 20 at Carrickfergus Elim Church at 1pm, followed by Victoria Cemetery.
Today has undoubtedly been one of the toughest days I’ve ever had as a parent. We’ve all cried & cried & cried some more. Noah was a blessing to us, he taught us what strength & grace really is. Safe in the arms of Jesus. Sleep tight wee man, we will miss you desperately. 🌈💙 pic.twitter.com/nwa0HMXKsW— Angie 🦋🌈🦸🏼♂️💙 (@redgirlang) July 17, 2019
The disease which Noah suffered from, an extremely rare form of Leukodystrophy, is estimated to affect just 250 worldwide.
It can leave sufferers unable to walk, talk or eat. It can also cause spasticity, reduced cognitive ability, blindness and deafness.
There is no known cure for the disease
Belfast Telegraph Digital