Little Fermanagh girl Ellie Nicholl dies from rare neurological condition, aged just 7
The family of a little Co Fermanagh girl who has died after battling a rare neurological condition have paid tribute to her tremendous courage.
Ellie Nicholl (7) from Enniskillen was only the 22nd person in the world with a slow progressive neurological condition, called H-ABC syndrome.
On Wednesday morning, her family posted on her Facebook fundraising page: “This morning our beautiful angel Ellie got her wings after a long and difficult fight in this earthly world. We know that she is now free and bound no more by her illness and is already looking down on us.
Memories of Ellie, her beautiful smile and tremendous courage will keep us brave in the journey ahead without her.”
Last month, the family posted: “We have taken Ellie back to the South West Area Hospital...but it is with broken hearts to say goodbye. We are not sure of how long we have but it will never be long enough.”
The family had raised over £30,000 for The Ellie Nicholls research fund in a bid to help researchers in America find a cure for the disease, which meant that Ellie was unable to walk or speak and had uncontrollable movements of her body.
Some of the money was also donated to the Horizon West Children’s Hospice who supported Ellie and her family throughout her battle.
They had raised the money by auctioning items such as signed Carl Frampton gloves, a signed Ulster Rugby jersey and jerseys signed by both the Republic of Ireland and Northern Ireland football teams.
Hundreds of people, including First Minister Arlene Foster, have paid tribute to the little girl on social media.
Arlene Foster said: "This morning I visited the new mencap facility in south Belfast where young children with learning disabilities are being so well looked after. I was really pleased to see the young people and the joy in their eyes. Then I heard this very very sad news. No more pain."
Scott Thompson said: “So sorry to hear this. Your determination and fight are an inspiration to us all. My thoughts and best wishes are with you all.”
Tori Keys added: “A little beauty. lots of love to you and the rest of your family Ciara. She was a little dote.”
Belfast Telegraph Digital