Northern Ireland boy Cameron Truesdale who battled brain tumour passes away
Northern Ireland teenager Cameron Truesdale has passed away after a long battle with a brain tumour.
The 13-year-old from Waringstown, Co Down died on Wednesday surrounded by his family.
He had been battling the brain tumour since January 2017 and doctors had told his family it was inoperable.
Cameron's family posted a tribute on their 'Cure4cam' Facebook page.
"Wednesday evening a piece of our heart was taken and carried to heaven," they wrote.
"Cameron passed away surrounded by his family. He fought with all his might for 20 months after we where given 9 months. He did this with more courage and strength than we will ever know.
"To the best son, stepson, brother, grandchild and friend.
"We will miss you more than anything but now you are free from cancer and you can rest. We will carry you in our hearts forever.
"We would appreciate everyone’s prayers while we try to cope with the searing pains in our hearts."
Cameron suffered from Diffuse Intrinsic Pontine Glioma, also known as 'DIPG', it affects just 30 to 40 children a year in the UK and Cameron was the only child with the disorder in Northern Ireland.
Last year he was brought to Mexico to take part in an experimental clinical trial, with his family fundraising the £300,000 needed for the full 10-months of treatment.
A number of groups came together to help fundraise for Cameron's treatment.
In May, 17 members of Banbridge LOL20 took part in a four-day 90 mile trek along the Western Front to remember the fallen from the First World War and raise money for Cameron and the children's cancer unit in Belfast.
Northern Ireland snooker star Mark Allen met Cameron after his Masters win and presented him with a cheque towards his treatment.
The Banbridge-based Downshire Guiding Star Flute Band said the band would not parade this weekend as a mark of respect.
"Cameron was an exceptional boy who put up a unbelievable fight against a terrible disease that originally gave him only 9 months to live," a band spokesperson said.
"He fought on for 20 months which shows the strength and courage of the boy and also the length and breadth his family went to get him the help he needed, while constantly supported him and his needs.
"Our thoughts and prayers are with Cameron’s entire family circle at this difficult time, especially his dad Hammy."
Belfast Telegraph Digital