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Baby misses out on life saving treatment by one week

A couple who had a miracle baby after five years of trying were devastated when their son missed receiving the world's most expensive drug from the NHS - costing £1.79 million for a single dose - because he was a week too old. Overjoyed when they had Zakariya, now eight months, Londoners Mostafa and Tara Aballai, 31, were heartbroken when he was diagnosed with Spinal Muscular Atrophy or SMA type one - a degenerative genetic condition causing paralysis and respiratory problems - in May this year.

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