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Video: Soft-out option would have allowed Charlene Barr to see her dream and vision become reality

A sister of a young Co Armagh woman who died while waiting for a lung transplant has given her endorsement to a campaign to have the 'soft-out' option on transplant donation extended to Northern Ireland. Charlene Barr was born with cystic fibrosis and spent the first year of her life in the Royal Victoria Hospital. She had several major surgeries and there were times that it seemed she might not survive. Charlene visited the Maya, Kampala area of Uganda with her family at Easter 2008. The trip transformed her focus on life. Her sister Rebecca said: "When Charlene had to drop out of school during her A levels the following year due to failing health and needing a lung transplant, it was then she made the decision that she would raise money to build a school in Uganda so that children there could be given the chance of an education." ‘Charlene’s Project’ was launched in September 2009 and she began the journey towards building Hidden Treasure Primary School. She continued to have the hope of transplant but sadly she never saw the school having been built as she passed away at home, aged just 20. More information about the work of is available on the project website at www.charlenesproject.org The annual fundraiser for Charlene's Project is being held at St Saviours Church, Dollingstown, on December 13 from 7.30-noon. Festive fry-ups will be on the menu. Credit: Belfast Telegraph


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